Hey Everyone,
As you all should know I have Cystic Fibrosis, but
I have such a mild case of it that it's like I'm not really sick at all
till I catch a cold or an infection. I don't do my treatments don't
remember the last time I ever did. Yet I go for my checkups every 3
months and they can't tell the difference. I'm always healthy they say
except for being obese and that caused my heart to enlarge. But other
then that I seem fine. I take my enzymes yes because my stomache does
get upset if I dont' take them. But sometimes I'll only take them with
2 meals ya know and don't take them with lunch and I do fine skipping
them at lunch when I'm at school I don't eat a very big meal but if I
do I take them.
When ppl find out I have cf they double take
they can't believe seeing as how I'm not coughing my guts up all the
time and because I am obese. They just don't believe me, almost makes
me feel as though I"m living a lie. Especialy when I talk to ppl who have CF and have to go to the hospitals to stay and have to
take all these meds and have so many treatments they have to do and its like there has to be something wrong ya know look at all of you and look at me! Yet they
confirmed it by genetic testing and the sweat test. They can't figure
it out themselves how I'm so obese and not having serious complications
from the CF itself.
I even just a month ago had the Lap Band
Weight loss surgery to loose the extra 100 pounds I"m carrying around!
I've mad history doing that, I'm the first one to ever have it done
they tell me. And I not only feel separated from the normal world I'm
seperated from the CF world as well in way. Where do I belong where do
I fit in? You all have been wonderful friends to me I could never repay
it. But I still feel separated from you and the lives you live because
of CF the one thing we all have in common also separtes me from you.
Its hard to fathom that ya know. so I've been kinda down lately I'm
pretty good at not letting it show cause I feel I don't deserve to you
know cause I have it so easy it seems compared to you all. I just had
to get that out I didn't want to have to type it out conversationaly
with anyone be to draining. So I thought this would be the quickest way
to do it and get if over with. I thank you all for your time if you've
read the whole thing straight through. It has helped. Thanks Again
Your Fellow .......CFer???,
Dana