Amber's Abode

me with a fan blowing my hair

I'm 31 and live in Portland, Oregon. I have cerebral palsy, and use a power wheelchair.

I love anything to do with music, especially karaoke recently, computers, Anime, kids, people, writing, reading, watching movies, enjoying outdoors when it's not raining, pretty much life in general.

I play Scrabble fairly well, and I'm currently working on improving my almost nonexistent chess game. I'm hoping to get further into digital photography soon as another outlet.

My newest hobby is playing Texas hold em for free, online or in person, and I'm getting pretty good at it.

Starving Writer

Like all starving writers, if you can afford to donate it, I would appreciate it.

 

A lousy vacation

Thursday, February 21, 2008 at 03:07 PM by Amber - Tagged as Health

Well, I really don't recommend a hospital stay as a vacation. That's where I was for the last week while they tried to get to the bottom of this infection and extreme side effects thing. They finally set me free from all of the antibiotics, and apparently the bladder infection is gone, but I'm still more than slightly nauseated today, so I'm not sure exactly what is wrong.

There wasn't much good to report inside the hospital. Just a lot of sleeping and stupid daytime TV that I don't usually watch. But I got to connect with a couple of really good nurses, one of which has a one-year-old son with the same variety of cerebral palsy as me. So she was excited to meet me and see that I was so with it and together. Little does she know. She asked for advice. All I could think to say was let him be who he is and try not to make him any more or less than whenever that will be. We were going to stay connected, but she hasn't contacted me at this point yet.

We're going to try to start with a new home health organization. And the one that neglected me has been reported to adult protective services. So hopefully things will change. Naturally I'm skeptical.

But for now it feels good to be in street clothes for the first time this month and to be able to go out of the house. I'm not sure what to do first, but I know what I'm doing tomorrow.

Yes! Amber gets a big kid drink and hugs from seemingly long-lost friends in her favorite "living room!" How wonderful it is to actually feel 30 again.